0 comments on “In Focus: Joan Marston”

In Focus: Joan Marston

In Focus: Member Profile

___________________________________________
Joan Marston is based in South Africa and comes from a background in Nursing and Social Science. She is the Global Ambassador of the International Children’s Palliative Care Network (ICPCN) having served as its Chief Executive. She was one of the founding members of the original ICPCN Steering Committee in 2005. More recently, she has also been part of the group that developed the new Guidelines for Persisting Pain in Children, as well as Guidelines for Disclosure in Children for the World Health Organization.

With twenty-nineyears of experience in palliative care for children, she has provided this specialized care in the roles as Executive Director of Bloemfontein Hospice and as founder of the Sunflower Children’s Hospice in 1998 in Bloemfontein, South Africa, alongside her work in a regional network for life-limited children, the St. Nicholas Bana Pele Network in 2009. As the national paediatric development manager for the Hospice Palliative Care Association of South Africa from 2007 to 2010, Joan and her team developed a strategy for a national network of services, promoting the considerable growth of the number of paediatric palliative care services for children in South Africa. During that time she was the Project Manager for a programme to develop children’s palliative care Beacon centres in Tanzania, Uganda and South Africa.

A committed advocate for children’s right to palliative care and pain relief, Joan has also  worked towardsresponsive palliative care for children and adultsduring acute and protracted humanitarian crises. When asked about some of the ethical dilemmas humanitarian healthcare workers might face when confronting terminally ill or injured children, she said, these include prioritising of scare resources such as personnel, time and medicines when saving lives is critical, especially when palliative care is seen as non-essential. Withholding or withdrawing treatment that could prolong life, spending time with a dying child when personnel are needed to deal with acute emergencies, and developing/using comforting child-relevant communication are additional ethical issues. Practically, lack of training in and understanding of palliative care and pain relief in children by humanitarian first responders—as few have paediatric formations—and a lack of palliative care workers in humanitarian situations is a main contributing factor to the development of ethical dilemmas. Humanitarian healthcare workers may also find themselves overwhelmed by the number of adults needing care, or by the reality that adults may leave an ill or injured child due to their own inability to face the issue of children dying. Undoubtedly tragic choices along the lines of those listed will need to be made in harrowing circumstances, but collaboratively making those decisions is part of the work Joan Marston and the larger networks she is involved in continue to work on in order to mitigate and minimize their difficulty.

Joan Marston is an active member of the Anglican Church and a Lay Minister in the Cathedral in Bloemfontein. She is also an Honorary Lay Canon of Blackburn Cathedral in Lancashire, England. She can be reached at joanmarymarston@gmail.com

[Sources: http://www.icpcn.org/joan-marston/, and personal communication]

0 comments on “Lost generation: The case of Rohingya children”

Lost generation: The case of Rohingya children

Featured Commentary


by Jhalok Talukdar

Lost generation: The case of Rohingya children

The Rohingya people have been living in Myanmar for generations, however, they are not recognized as citizens there. The government consider them as migrant labourers who came from India and Bangladesh during British rule. When the Myanmar government passed the Union Citizenship Act in 1948 they did not give citizenship status to Rohingya, only providing them with foreign identity cards. They were also excluded when the government passed the new citizenship laws in 1982. The government restrained their movement and limited their right to work, study or access health care services. The Myanmar military  cracked-down on the Rohingya several times in the name of controlling the Arakan Rohingya Salvation Army (ARSA) terrorist group. The ARSA, however, are not exclusively seen as terrorists; they consider themselves as protector of the Rohingya community.

0 comments on “Season’s Greeting from HumEthNet”

Season’s Greeting from HumEthNet

Take some time to read about some of the work we have been up to in 2017:

0 comments on “What is the role of ethics in humanitarian health research?”

What is the role of ethics in humanitarian health research?

See HumEthNet members Dónal O’Mathúna, Lisa Schwartz and Matthew Hunt discuss the important role ethics plays throughout the research cycle and within public health research during a humanitarian crisis.

About the R2HC research ethics tool.

0 comments on “You’re invited to complete ALNAP’s SOHS 2018 survey”

You’re invited to complete ALNAP’s SOHS 2018 survey

On behalf of ALNAP,

We are currently carrying out the research for the latest State of the Humanitarian System report. We are keen to maximise the number of completed surveys across different responses in order to make our analysis as accurate and useful as possible.
Anyone who has worked in a humanitarian response since 2015 can complete it. (It will only take only 10 minutes):


This is a unique opportunity to get your voice heard: your views could help shape future humanitarian action.
Thanks in advance for your help and we look forward to getting more responses soon.


ALNAP Secretariat

* This survey is also available in French, Spanish and Arabic in the link below, where you can also find a survey for governments in all four languages: alnap.org/news/complete-sohs-2018-survey
0 comments on “Military Medicine: NATO Lecture Series”

Military Medicine: NATO Lecture Series

On behalf of the CIMVHR:

CIMVHR | Nov 2017

ICRSMV | nov 2017

Canadian Institute for Military and Veteran Health Research
L’Institut canadien de recherche sur la santé des militaires et des vétérans

NATO Lecture Series

 

On the 28 & 29 of November, a lecture series on Moral Injury and Military Mental Health will take place at The Royal’s:  Institute of Mental Health Research in Ottawa. Full details on the lecture series can be found by following this link:

 

If you wish to attend you must first register following the instructions below.

 

How to register:

 

STO Event booking Procedure :

  1. Use the link https://events.sto.nato.int/ 
  2. Click on Create an account (below the button “log in”)
  3. Fill in all the required fields (mandatory),
  4. Also fill in the Captcha (reproducing numbers and letters to prove you are not a robot)
  5. Click on register (bottom of page)
  6. You will receive an email notification to activate your account
  7. Click on the link in above email to activate your account
  8. Once activated you can came back to this site any time and book any event
  9. Go/click on the Event Summary in the top bar of https://events.sto.nato.int/ and scroll to Lecture Series HFM-284 and, click on the event
  10.  Login and book before Nov 22nd

 

It is important that you enrol as there is limited space, there is no cost to enrol.

 

 

Thanks and we hope to see you there.

Série de conférences OTAN

 

Le 28 et 29 novembre, l’OTAN organise une série de conférences sur les blessures morales et la santé mentales des militaires. Les conférences seront tenues à Ottawa, avec l’Institut de recherches en santé mentale l’organe de recherche des Services de santé Royal Ottawa. Pour plus de détails sur la série de conférences, veuillez suivre le lien suivant :

 

Si vous aimeriez participer, vous devez vous inscrire en suivant les directives ci-dessous :

 

Les démarches d’inscription avec STO Events :

  1. Utilisez le lien suivant : https://events.sto.nato.int/ (en anglais seulement)
  2. Créez un nouveau compte (‘Create an account’, le lien est sous la section ‘Login’)
  3. Remplissez les champs obligatoires
  4. Complétez le CAPTCHA requis (test de réponse de vérification pour s’assurer que l’utilisateur est humain)
  5. Appuyez sur ‘Register’ (bas de la page)
  6. Vous recevrez un courriel de confirmation.
  7. Appuyez sur le lien dans le courriel pour activer votre compte.
  8. Une fois votre compte activé, vous pourrez retourner au site pour vous inscrire aux conférences
  9. Appuyez sur le lien ‘Event Summary’ dans le menu de la page  https://events.sto.nato.int/ pour trouver la série ‘Lecture Series HFM-284’, choisissez cette événement
  10. Ouvrez une session et réservez votre place avant le 22 nov.-17

 

Il est important de réserver votre place car l’espace disponible est limité. Il y a aucun cout associé à votre participation.

 

Merci et nous espérons vous voir à la conférence.

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0 comments on “Webinar: New WHO guidelines on ethical issues in public health surveillance”

Webinar: New WHO guidelines on ethical issues in public health surveillance

Seminario virtual: Nuevas pautas de OMS sobre ética en la vigilancia de la salud pública –notar enlace para la sesión corregido (AHORA SÍ)
 
La OPS lo invita a un seminario virtual para presentar estas pautas, recientemente publicadas por OMS, que constituyen el primer marco internacional para dar orientación ética en los temas de vigilancia en la salud pública. El seminario contará con presentaciones de la Dr. Amy Fairchild (Profesora de la Escuela Mailman de Salud Pública de la Universidad de Columbia y actualmente también Decana Asociada de Asuntos Académicos de Texas A&M) y el Dr. Michael Selgelid (Director del Centro de Bioética de la Universidad de Monash). Ambos trabajaron en el desarrollo de las pautas y representan a Centros Colaboradores de Bioética de la OPS/OMS.
El seminario virtual se llevará a cabo el 21 de noviembre de 3:00 a 4:30 pm (hora de Washington DC) y será en inglés. Para participar siga este enlace: https://paho.webex.com/paho/onstage/g.php?MTID=e4df9a57d1be734860c8eea47e91646aa
Las pautas están disponibles en inglés en: http://apps.who.int/iris/bitstream/10665/255721/1/9789241512657-eng.pdf?ua=1. La OPS próximamente publicará las pautas en español.
Para recibir más información sobre temas de ética de la salud pública, suscríbase por medio de este hiperlink a la lista de OPS Public Health Ethics .                                     
 
 
Webinar: New WHO guidelines on ethical issues in public health surveillance –note NOW corrected link for session
 
PAHO invites you to a webinar to present these guidelines, recently published by WHO, which are the first international framework to provide ethics guidance on issues in public health surveillance. Dr. Amy Fairchild (Professor at Columbia Univeristy Mailman School of Public Health, currently serving as Associate Dean of Academic Affairs at Texas A&M) and Dr. Michael Selgelid (Director of Monash University’s Bioethics Center) will present the guidelines. Both participated in their development and represent Bioethics Collaborating Centers of PAHO/WHO.
The webinar will take place on November 21st from 3:00 to 4:30 pm (Washington DC time) and will be conducted in English. To participate follow this link: https://paho.webex.com/paho/onstage/g.php?MTID=e4df9a57d1be734860c8eea47e91646aa  
The guidelines are available (in English) at: http://apps.who.int/iris/bitstream/10665/255721/1/9789241512657-eng.pdf?ua=1. PAHO will soon publish them in Spanish.
To receive more information on public health ethics topics, subscribe through this hyperlink to PAHO’s listserv Public Health Ethics .                                           
 
 
Suscripción a lista InvestigaciónÉTICA                                       Subscription to list InvestigaciónÉTICA                                             
Programa Regional de Bioética                                                   Regional Program on Bioethics                                                         
www.paho.org/bioetica                                                                www.paho.org/bioethics                                                                                       
Gestión del Conocimiento, Bioética e Investigación                    Knowledge Management, Bioethics and Research                                       
Organización Panamericana de la Salud                                      Pan American Health Organization       
0 comments on “Is there space for palliative care in humanitarian action?”

Is there space for palliative care in humanitarian action?

Read this new blog post to find out about…

MAKING SPACE FOR PALLIATIVE CARE IN HUMANITARIAN ACTION: REFLECTIONS ON OBSTACLES TO THE INTEGRATION OF PALLIATIVE CARE APPROACHES IN HUMANITARIAN HEALTHCARE

by Matthew Hunt, Carrie Bernard and Kevin Bezanson

 

http://www.elrha.org/r2hc-blog/making-space-palliative-care-humanitarian-action-reflections-obstacles-integration-palliative-care-approaches-humanitarian-healthcare/

 


This research project  is funded by Elrha’s Research for Health in Humanitarian Crises (R2HC) Programme.

r2hc_logo_FOR ONLINE USE

R2HC DFID and WT- FOR ONLINE USE

0 comments on “From Eh to Z(ambia) – Reflections of Canadian’s First Time in the Field”

From Eh to Z(ambia) – Reflections of Canadian’s First Time in the Field

Photo by Gautham Krishnaraj in Kapiri Mposhi, Zambia


Gautham Krishnaraj is a 2017–2018 Aga Khan Foundation Canada International Youth Fellow, 2016–2017 RBC Students Leading Change Scholar, and recent MSc Global Health Graduate (McMaster University). He currently resides in Mombasa, Kenya where he is working with the Madrasa Early Childhood Program, an Aga Khan Development Network Initiative.


There’s something special about the “Z” countries. Often overlooked despite tremendous sights for tourists and rich potential for cultural exchange, they are unique places that not everyone sets out to see. Zambia was an unexpected destination (with a layover in Zimbabwe, but I’m not quite crossing that off my list) during my eight month journey as an Aga Khan Foundation Canada (AKFC) International Youth Fellow, working with the Madrasa Early Childhood Program – Kenya (MECP-K). I am here to provide documentation and reporting support while two MECP-K colleagues are conducting the final support visit in a Care for Childhood Development (CCD) consultancy project with the Luapula and Firelight Foundations. Our work centres around teaching new caregivers (with children 0-3 years old) the importance of play, touch, and stimulation in the critical early years of life. We do so through community based CCD Counsellors, who have been trained in CCD and have engaged their local communities over the past year.

Over the past two weeks, we have observed and mentored our CCD Counsellors interacting with caregivers in Lusaka, Kitwe & Kabwe, as well as more rural communities in Ndola, Rufansa, and Kapiri Mposhi. Covering three provinces and hundreds of kilometers, I can attest to the fact that Zambia is very much, as our local partners have noted, a country under construction. Crimson sunsets are dazzling through the copper dust of the daily grind. It is a beautiful place to have my first true “field experience” of conducting research, although it has not been without its challenges.

On Aid

This is an internal ethical dilemma that long predates my arrival in the field. My aspirations are, primarily, humanitarian. I believe that humanitarian health care is the bleeding edge of the aid sector, engaging when local systems are completely overwhelmed by a disaster; man-made or natural. It feels somewhat easier to justify the thousands of dollars spent on humanitarians’ travel, insurance, prophylaxis, R&R, lodging etc., when you know that the local providers are acutely in need of immediate external support.While I recognize and grapple with the challenges of this short-term dialogue of urgency, I struggle far more with the challenges that arise in the context of International Development. Many large organizations, even those starting with the good intentions of building sustainable programs, inevitably fill roles that make it impossible to leave. But eventually they must. Vacuums follow. While I am certain that these questions have have been raised countless times prior, and will be raised countless times to come, it begs the question of a better alternative. I remember reading once that Aid is a sector we all wish didn’t exist, because it recognizes our collective failure to create an equitous global society. Can we do more than wish? How do we contribute without feeling/being complicit?

On Breastfeeding

My role here of documenting feedback on the CCD program involves conducting video recorded interviews, and taking plenty of photos. I’ll discuss consent shortly, but every caregiver and counselor signed consent forms before I pulled out my camera. One challenge I did not expect was that during the vast majority of interviews, with the camera clearly visible and me indicating that I had started recording, many  women start to breastfeed. I fully support and believe in the importance of de-stigmatizing and normalizing breastfeeding, as it is a most natural part of life. However, all but one of the participants were interviewed were young (16-21 year old) mothers, so using video footage that very clearly shows the whole breast introduces some problems. Am I complicit in the stigmatization of breastfeeding by not using that footage, especially as breastfeeding is a critically important aspect of care for Early Childhood Development? The legal age of consent here is 16, but what happens if the reporting video I will make is circulated elsewhere in the larger Aga Khan Development Network (AKDN)?

On Communicating Consent

Finally, and most critically, few of the rural caregivers had a strong grasp of English. Despite the consistent presence of a translator, and despite all of the CCD Counsellors speaking English fluently, one cannot help but wonder how much is lost in translation. This is particularly important when considering consent. Explaining the purpose and/or potential applications of research can be difficult even in a common language; add in translation and the situation is rife with chances of miscommunication. I have never felt entirely sure that the participant understood why three people had come all the way from Kenya “just to see how they play with their baby”. Indeed, the mere fact that we had come from afar may pressure the participant’s perceived ability to decline participation, further exacerbated by a potential sense of obligation based on existing relationships with the CCD Counsellors. It is hard enough to rapidly build rapport and comfort between researcher and participant in English, and immeasurably more so in a few scattered words of Bemba.

While it’s not possible to fully address ethical challenges A-Z, I did my best to keep my camera stowed until the forms were signed, to sit on the ground with the participants, and to capture them in their best light. Under the brilliant Zambian sun, the latter wasn’t hard at all.

The views expressed here are entirely those of the author, and do not represent the views or opinions of the Humanitarian Health Ethics Network, Aga Khan Development Network, Aga Khan Foundation Canada, Madrasa Early Childhood Program Kenya,