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by Matthew Hunt, Carrie Bernard and Kevin Bezanson
This research project is funded by Elrha’s Research for Health in Humanitarian Crises (R2HC) Programme.
Matthew Hunt recently joined an online conversation posted on the Evidence Aid blog on the ethics of evidence in humanitarian action.
From September 17-19, Kevin Bezanson represented the Humanitarian Health Ethics research group at the 5th International Public Health and Palliative Care Conference held in Ottawa, ON.
Here is the PDF version of the poster entitled –
Health professionals’ lived experiences of palliative care provision in humanitarian crisis: Moral experiences confronting the suffering of patients who are dying or likely to die in settings of war, disaster, or epidemic.
The poster is based on ongoing research for a R2HC funded project entitled:
CLICK HERE FOR THE CONFERENCE PROGRAM
Refugees and many migrants suffer from limits on their abilities to move around the world, even in pressing or urgent circumstances. They are often forced to leave their homes for reasons beyond their control, including war and civil unrest, political and religious persecution, economics, or famine and other natural or man-made disasters. Once displaced, whether internally or externally, they face pressing needs for food, water, shelter, and health care. Local governments, international agencies and non-governmental organizations often struggle with providing for their needs, particularly in resource-poor regions of the world. Recent socio-political changes in the United States, Western Europe and elsewhere have placed additional restrictions on the rights of migrants and refugees.
In solidarity with these refugees and migrants, we are hosting a no-travel virtual conference to explore the ethical, legal, philosophical, and social issues associated with refugee and migrant health in a world of economic, geopolitical, and psychological borders.
Location: Online (no travel)
Cost: Free
For registration and other information: http://www.resistingborders.com
One year into this project, we are finalizing data collection, moving forward with analysis, and have begun dissemination activities. Progress includes:
Fieldwork:
Analysis:
Outputs to date
Invited Presentations
Nouvet, Elysée (2016) Recherche anthropologique au service de la santé publique : méthodes, considérations, et EER (évaluation ethnographique rapide). Training session presented to the Comité National d’Évaluation de la Recherche en Santé (CNERS), Conakry, Guinée, le 19 décembre
Schwartz, Lisa (2016) L’éthique de recherche socio-anthropologique. Training session presented to the Comité National d’Évaluation de la Recherche en Santé (CNERS), Conakry, Guinée, le 19 décembre
Peer-Reviewed Presentations
Nouvet, Elysée & Schwartz, Lisa (2017) From the front lines: Trialing research ethics in the time of Ebola. Paper presented at the World Association for Disaster and Emergency Medicine Congress on Disaster and Emergency Medicine. Toronto, Canada. April 28th
Nouvet, Elysée (2017) The need to care, learn, and improvise: Enacting research ethics during the West Africa Ebola outbreak. Paper accepted for presentation at Ethox: Oxford Global Health and Bioethics International Conference. University of Oxford, Oxford, England. July 17-18th
Pringle, John (2017) Lessons in research ethics: Experiences of clinical research participation during the West Africa Ebola crisis. Paper accepted for presentation at Ethox: Oxford Global Health and Bioethics International Conference. University of Oxford, Oxford, England. July 17-18th
Workshop Participation
Pringle, John. Ethical Design of Vaccine Trials in Emerging Infections Workshop. Hosted in conjunction with the Oxford Global Health and Bioethics International Conference and Sponsored by a Wellcome Strategic Award and the Ethox Centre. University of Oxford. July 18-19, 2017
From our colleagues at the World Health Organization:
Nuevas pautas de OMS sobre ética en la vigilancia de salud pública
Estas pautas, recientemente publicadas por OMS, constituyen el primer marco internacional para dar orientación ética en los temas de vigilancia en salud pública. Están disponibles (en inglés) en:http://apps.who.int/iris/bitstream/10665/255721/1/9789241512657-eng.pdf?ua=1
Para recibir más información y recursos sobre ética de la salud pública, suscríbase a la lista de OPS dedicada al tema usando el siguiente enlace: http://listserv.paho.org/scripts/wa.exe?SUBED1=PUBLICHEALTHETHICS&A=1
New WHO guidelines on ethical issues in public health surveillance
These guidelines, recently published by WHO, are the first international framework to provide ethics guidance on issues in public health surveillance. They are available at:http://apps.who.int/iris/bitstream/10665/255721/1/9789241512657-eng.pdf?ua=1
To receive more information and resources about public health ethics, subscribe to PAHO’s list devoted to the topic using the following link: http://listserv.paho.org/scripts/wa.exe?SUBED1=PUBLICHEALTHETHICS&A=1
McMaster University’s Global Health student, Madeline McDonald completed this report within the Masters in Global Health program, under the supervision of Dr. Elysée Nouvet.
The full report is available here.
The Hashemite Kingdom of Jordan shares its northern border with the Syrian Arab Republic, and has been one of the main receiving countries of fleeing refugees since the beginning of the Syrian conflict in 2011. Currently over 650,000 Syrian refugees live in Jordan, most outside of refugee camps (Ministry of Planning and International Cooperation, 2015).
Refugees face many significant health concerns, both acute and chronic. While some are related to the conflict such as injuries and infections, non-communicable diseases claim the most Syrian lives (UNHCR, 2016b). Refugees receive care within the extensive Jordanian health system, which includes public, private and NGO facilities and services. The influx of refugees has put increased strain on both medical and human resources within the Ministry of Health in Jordan.
This paper examined factors affecting provision and accessibility of palliative care Syrian refugees. Palliative care focuses on providing relief from symptoms, pain and stress of a serious illness for patients and families (Razzak & Smith, 2014). Formal palliative care services are only available in the capital city of Amman: one in-patient palliative care unit and one home-based care service (Al Qadire et al., 2014). Jordan has no national policies on palliative care, nor palliative care education for health care providers.
Factors influencing provision and accessibility of palliative care services for refugees fall into three distinct categories:
In conclusion, some future directions for research and policy are proposed for the national and international levels. These will support improvement and expansion of palliative care services in Jordan as a resource- and cost-effective way to provide better care for refugees and citizens alike.
PHOTOGRAPH: Syrian refugees seek medical attention at the Jordan Health Aid Society Clinic in the Zaatari refugee camp, located 10km east of Mafra, Jordan on June 04, 2014.
Photo © Dominic Chavez/World Bank Photo ID: Jordan_EDIT_005
The Global Forum on Bioethics in Research will hold a two-day meeting in Bangkok, Thailand, on 28-29 November 2017 on the theme of: “the ethics of alternative clinical trial designs and methods in low- and middle- income country research”.
The CALL IS NOW OPEN for:
See the following link for more details and information:
http://www.gfbr.global/news/call-now-open-2017-gfbr/
If you have any questions about this call please email gfbr@wellcome.ac.uk.
All applications should be sent to gfbr@wellcome.ac.uk by 21.00 BST on Tuesday 30 May 2017, in English. Please specify in the subject line whether you are applying to attend, present a case study or present on guidance or a policy issue. Applications received after the deadline will not be considered.
