0 comments on “Missed our event in Geneva? Looking for a summary? Here it is.”

Missed our event in Geneva? Looking for a summary? Here it is.

 

Have a look at a summary of the events that took place 26-27 September when the HHE Research Group visited Geneva.

Thank you to our co-hosts CERAH, and to all of our participants over the two days and one evening of exciting activities.

 

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By all means, if you have thoughts you’d like to share with us about our ongoing research or the events from September in Geneva, please contact us!

0 comments on “HHE Representation at HSR2018, Liverpool”

HHE Representation at HSR2018, Liverpool

From 8-12 October the Fifth Global Symposium on Health Systems Research was held in Liverpool, UK.

The HHE research group was well represented with a presentation on the Perceptions of Ebola Virus Disease Research project by Ani Chénier entitled “Beyond Triumphalist Discourses” and a poster on the Palliative Care in Humanitarian Crisis settings.

From the study on perceptions of EVD research:

The full citation of the presentation is:

Elysée Nouvet, Ani Chénier, Oumou Bah-Sow, John Pringle, Sékou Kouyaté, Sonya de Laat, Matthew Hunt, Carrie Bernard, Lynda Redwood-Campbell, Laurie Elit, Lisa Schwartz, Beyond triumphalist discourses: West African voices on the need to recognize and sustain national research capacity in the wake of the 2014-6 Ebola epidemic. Fifth Global Symposium on Health Systems Research, 8 12 October 2018,Liverpool, UK.

ABSTRACT:

BACKGROUND The 2014-6 West African Ebola epidemic, in which a neglected disease for which no effective treatment or vaccine was yet known claimed over 11,000 lives, was a stark reminder of the essential role that health research plays within health systems.

In 2016, we launched the “Perceptions and moral experiences of research conducted during the West Africa Ebola outbreak” study. This qualitative study seeks to better understand socially-situated practices and moral experiences of research conducted in public health crisis situations, and to deepen understanding of challenges to and strategies for the ethical conduct of research during public health emergencies. It explored, among other issues, the practical and ethical complexities of international research collaborations established during the outbreak.

METHODS We conducted in-depth semi-structured interviews with 108 stakeholders directly involved in research at trial sites in Guinea, Sierra Leone, and Liberia. Participants included: 1- people having participated in clinical and persistence studies; 2- people engaged in the conduct of research (as investigators or research staff), 3- local and international research ethics board members; 4- governmental and civil society leaders. Most (91%) were from West African countries.

RESULTS Participants identified many strengths of research conducted during the outbreak, notably: 1) the success of some international partnerships (especially vaccine trials), 2) the development of innovative and adapted strategies for communicating with participants, 3) opportunities for capacity building, especially for first-time researchers, and 4) rigorous and constructive oversight by national research ethic boards.

Key challenges or failures included:  1) limited opportunities for higher-level engagement of affected-country researchers within international partnerships, 2) limited engagement of mid- or late-career researchers in the development or leadership of studies, 3) unequal access to and control over research materials like bio-samples, and 4) failures to sustainably invest in national research institutions.

CONCLUSIONS Our findings highlight the important role played by health research within local and national health systems, and complicate triumphalist discourses about the role of ‘capacity building’ in international research. During the 2014-6 West African Ebola outbreak, efforts towards capacity building were appreciated by many. Yet many also expressed frustration with the lack of investment in national research infrastructure and institutions, and the lack of opportunities for mid- and late-career researchers from affected countries. This had important practical implications, notably for the setting of research priorities that reflect needs and possibilities at the national level. Capacity must not only be built: it must also be recognized, supported, and sustained.

 From the study on palliative care in humanitarian crises:

Full reference for the poster:

de Laat, S., Matthew Hunt, Elysée Nouvet, Olive Wahoush, Kevin Bezanson, Carrie Bernard, Lynda Redwood-Campbell, Laurie Elit, Wejdan Khater, Oumou Bah Sow, Emmanuel Musoni, Rachel Yantzi, Ani Chénier , Lisa Schwartz, Dying in the Margins: Palliative Care, Humanitarian Crises and the Intersection of Global and Local Health Systems, Fifth Global Symposium on Health Systems Research, 8 12 October 2018, Liverpool, UK, Abstract ID: 3989

The poster is available below (& here as a PDF):

deLaat_ID3989_Poster_HSR2018_Final

Abstract:

OBJECTIVES There is no doubt that the primary goal of humanitarian healthcare has to be to save lives. Given the extremity of the crises in which humanitarians respond, not all lives can be saved. There is a growing acknowledgment of the role of palliative care in humanitarian healthcare. Here we present an interpretive description of the experience of palliative care in a variety of humanitarian crisis settings. Our objective is to map the diversity of those experiences and to examine the innovations and inconsistencies of global and local health systems to assess the obstacles and opportunities of these health systems in the support of palliative care during international humanitarian crises.

METHODS Four case studies were identified through stakeholder meetings and key informant interviews that represent a broad range of humanitarian emergency situations where palliative care needs arise:

  • A public health emergency: Guinea during the Ebola Crisis;
  • An acute conflict & refugee situation: Syrian refugees in Jordan;
  • A protracted refugee situation: Congolese and Burundian refugees in Rwanda; and,
  • Natural disaster situations: various geographic settings.

For each case study, in-depth, semi-structured interviews exploring experiences, needs, frustrations, and possibilities for palliative care were conducted with patients or family members of individuals with a terminal or life-threatening condition suited to palliative care. Along with interviews with crisis-affected people, local and international humanitarian healthcare providers were interviewed at each site.

RESULTS Global and local health systems—independently and intersecting with each other—emerged as a recurrent source of barriers to the provision of palliative care. Dominant themes include: global restrictions and local cultural anxieties to accessing essential medications for symptom relief; importance of culturally relevant, and locally informed, care and psychosocial support; the lack of international and local palliative care guidelines, training, and support for the provision of palliative care during international humanitarian crisis events. Changes to global health systems and improved interaction between local and international actors were cited as enablers to comprehensive palliative care provision. Palliative care was recognized as an essential component of holistic, comprehensive humanitarian healthcare, and should never act as a substitute to health system improvements for curative care.

DISCUSSION The alleviation of suffering is central to the work of humanitarian healthcare, and yet competing priorities often result in a lack of attention to palliative care. Our study presents critical insight onto the role of local and global health systems in the provision of palliative care in contexts of humanitarian crises.

 

2 comments on “Upcoming Event: September 26”

Upcoming Event: September 26

Evening_Poster_final

Small Humanitarian Acts that Make All the Difference in End of Life Care?
Evening Panel Discussion  |  18:30-20:30  | Maison de la paix
 
            Introductory remarks—

 

18:30-18:40
Dorschopper-doris2017_300x300is Schopper
 
Dr. Schopper is professor at the medical faculty of the University of Geneva and director of CERAH since July 2011.Trained as a medical doctor,Schopper spent several years with Médecins Sans Frontières (MSF) in the field. She was president of the Swiss branch of MSF and twice president of the MSF International Council. In 2001 Doris Schopper was asked to constitute an Ethics Review Board for MSF International. Since then she has chaired the Board coordinating the ethical review of MSF research proposals and providing advice on ethical matters to the organisation. httpslisa_preferred-photo-edited-e1430944033295://www.cerahgeneve.ch/cerah/faculty-staff/academics/prof-doris-schopper
 
 18:40-18:55
Lisa Schwartz
 
Prof. Schwartz is the Arnold L. Johnson Chair in Health Care Ethics with the Faculty of Health Sciences, Associate Professor in the Department of Clinical Epidemiology and Biostatistics, Associate Director of the Centre for Health Economics and Policy Analysis (CHEPA), and Associate Member of the Department of Philosophy, at McMaster University. Dr Schwartz is trained as a Clinical Ethics Consultant and has used and devised frameworks for the ethical challenges that arise in clinical care in high and low resource settings and in humanitarian crises settings. https://humanitarianhealthethics.net/home/about/lisa-schwartz/

 

 18:55-19:00 – Doris Shopper’s introduction of the keynote speaker
 
            Keynote message—19:00-19:20 (+5 mins of clarification questions)
 
Paul Bouvier on Small Acts of Humanitarian Kindness

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 Dr. Bouvier works with the International Committee of the Red Cross (ICRC) as course coordinator (the HELP course)and chair of the group on ethics in the practice of humanitarian action. Former ICRC Senior Medical Advisor, he is a medical doctor with specialization in pediatrics and public health, and Associate Lecturer at the Institute of Global Health, University of Geneva, where he has carried out research and prevention programs on child sexual abuse and violence. Along with his medical and training activities, Dr. Bouvier has also applied the perspectives he developed through his various roles and field experience in crises into various philosophical reflection and medical humanities activities. From published reflections on “small things and humanity” on the part of delegates visiting people in detention (2012), to an art history lesson on Francisco Goya’s Disasters of War prints in prefiguring Dunant’s Solferino relief efforts by several decades (2011), Dr. Bouvier has demonstrated his skills as a rich and diverse thinker on issues of suffering, morality and what it means to be human. A further complement to his professional work, and his intellectual writing, he has consulted on exhibitions at the International Red Cross and Red Crescent Museum<https://www.redcrossmuseum.ch/en> in Geneva including the main “Humanitarian Adventure” halls, and the most recent publication “Prisoners’ Objects<https://www.redcrossmuseum.ch/en/product/prisoners-objects/>.”
 
 
 19:25-19:30Schwartz introduces the panelists
 
 

 

           Panelists—19:30-20:15
 
0-2Ibraheem Abu Siam
 
Abu Siam, RN, CNS, is a Public Health Officer at UNHCR (Jordan). He is an experienced Public Health Specialist with a demonstrated history of working in the international affairs industry. Skilled in Policy Analysis, Government, Program Evaluation, Public Policy, and Research, he is a dedicated community and social services professional with a Master’s degree focused in Public Health/Community Nursing from Jordan University for Science and Technology. You can see him here on a video from the International Council of Nurses speak on the topic of safeguarding health during crises: https://www.youtube.com/watch?v=GFY8yHd_i_E
 
Emmanuel Musoni 
 
emmanuel_musoni-e1528994510848Dr. Musoni is a Psychiatrist at the Central Hospital of the University of Rwanda in Kigali (CHUK). Before starting his postgraduate studies in psychiatry, Dr. Musoni was the Clinical Director at the Masaka District Hospital, Rwanda. He also served as a Medical Officer in Darfur-North SUDAN for the UNAMID Peacekeeping mission. His research interests include bipolar disorders and palliative care. He is currently carrying out research on the effects and challenges of psychoeducation on patients with bipolar disorder in Rwanda. https://humanitarianhealthethics.net/home/research/hhe-research-studies/pall-iphc/case-study-conflict-protracted-refugees-rwanda/
 
 
Sonya_De_Laat2-2Sonya de Laat
 
Dr. de Laat is the Postdoctoral Fellow in Humanitarian Health Ethics at McMaster University, Canada. With backgrounds in anthropology and media studies, her interests and approaches are mixed and multidisciplinary—straddling social science, health science and humanities. Her research interests include the moral, political and historical dimensions of humanitarian visual culture. Currently, she is focusing on the role of photography in shaping people’s impressions of and in mediating responses to global migration, with a particular focus on the conditions and experiences of being a refugee, and on humanitarian (health)care for refugees. www.sonyadelaat.weebly.com
 
olive205-e1520279214382Olive Wahoush
 
Dr. Wahoush has been an advocate and researcher of refugee health care since 1987. She came to this topic through teaching undergraduate nurses maternal newborn health in a refugee camp in Jordan and through hospital administration and volunteer roles in Pakistan and Canada. Through her roles at the School of Nursing at McMaster University, Dr. Wahoush was instrumental is leading and promoting research with refugees, newcomers and other underserved populations. Recent research Dr. Wahoush has been involved in or leading include studies focused on reproductive health, health and resettlement of refugees and refugee-like families in Canada and exploring the selection process for refugees in transit countries like Jordan.
 
20:15-10:30  Schopper & Schwartz closing remarks
0 comments on “Becoming an anthropologist in post-Ebola Giunea”

Becoming an anthropologist in post-Ebola Giunea

Follow this link to the blog authored by Sekou Kouyate on the opportunities and challenges of becoming an anthropologist and a qualitative researcher in post-Ebola Guinea.

Kouyate is the research assistant and coordinator for HHERG’s two R2HC funded studies in Guinea: on perceptions of research and on the provision of palliative care during the 2014-16 Ebola Virus Disease outbreak.

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0 comments on “Is there space for palliative care in humanitarian action?”

Is there space for palliative care in humanitarian action?

Read this new blog post to find out about…

MAKING SPACE FOR PALLIATIVE CARE IN HUMANITARIAN ACTION: REFLECTIONS ON OBSTACLES TO THE INTEGRATION OF PALLIATIVE CARE APPROACHES IN HUMANITARIAN HEALTHCARE

by Matthew Hunt, Carrie Bernard and Kevin Bezanson

 

http://www.elrha.org/r2hc-blog/making-space-palliative-care-humanitarian-action-reflections-obstacles-integration-palliative-care-approaches-humanitarian-healthcare/

 


This research project  is funded by Elrha’s Research for Health in Humanitarian Crises (R2HC) Programme.

r2hc_logo_FOR ONLINE USE

R2HC DFID and WT- FOR ONLINE USE

0 comments on “Obstacles and moral experiences with palliative care provision in humanitarian crises…”

Obstacles and moral experiences with palliative care provision in humanitarian crises…

From September 17-19, Kevin Bezanson represented the Humanitarian Health Ethics research group at the 5th International Public Health and Palliative Care Conference held in Ottawa, ON.

Here is the PDF version of the poster entitled –

Health professionals’ lived experiences of palliative care provision in humanitarian crisis: Moral experiences confronting the suffering of patients who are dying or likely to die in settings of war, disaster, or epidemic.

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Kevin Bezanson presenting the HHE poster at the 5th International Public Health and Palliative Care Conference, Ottawa, ON, Sept. 17-19, 2017.

 

The poster is based on ongoing research for a R2HC funded project entitled:

Aid when there is ‘nothing left to offer’: A study of ethics and palliative care during international humanitarian action


The research project is funded by Elrha’s Research for Health in Humanitarian Crises (R2HC) Programme. The Research for Health in Humanitarian Crises (R2HC) programme aims to improve health outcomes by strengthening the evidence base for public health interventions in humanitarian crises. Visit www.elrha.org/work/r2hc for more information. The R2HC programme is funded equally by the Wellcome Trust and DFID, with Elrha overseeing the programme’s execution and management.